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Article posted Jun 20 2007, 3:55 PM Category: Brave New World Source: Anne Dachel Print

Autism and Vaccines: Why are They Afraid to Look?

Anne Dachel

Last week in Washington, DC, parents got a chance to present their side alleging that vaccines caused their child's autism. This is the most heated medical controversy in the nation and it has no signs of going away.

Part of the reason the debate is guaranteed to continue is because of what officials can't tell about us about autism. The Centers for Disease Control and Prevention has downplayed autism at every opportunity. It is infuriating to parents who have no reasonable explanation for why their child has autism and who are going broke paying for therapy and treatment to continually hear about what the CDC doesn't know. They don't know the cause or the cure for the disorder. They don't even know if there are more kids with autism, despite counting affected children for the last ten years. Federal officials are convinced of only one thing: Vaccines don't cause autism.

The CDC has their studies as proof of their claim, but these are rife with charges of manipulated data and conflicts of interest that reduce them to the "cigarette science" used to disprove that smoking caused lung cancer half a century ago. An official Institute of Medicine Report in 2004 settled nothing and the battle continues now in federal claims court in Washington, DC.

According to the media, the parents have no case and if they win, it won't be because they had any real proof of their claim, just that they managed to sway the minds of the three masters on the panel with their story of personal tragedy. For the public watching the coverage, it's unprecedented. The parents presented their case last week, but almost all the major news stories already had the verdict announced.

On Monday June 11th, NBC News had Pete Williams confusing the MMR vaccine with thimerosal-containing vaccines, yet adamant that "repeated studies have found no evidence linking autism to the vaccines."

Gardiner Harris at the New York Times that day also told us, "Every major study and scientific organization examining this issue has found no link between vaccination and autism but the parents and their advocates have persisted. " His story was picked up by other big city papers.

Newsday conclusively stated, "Large scientific studies have found no association between autism and vaccines containing thimerosal."

Tuesday, June 12th, ABC News earned the week's prize for saying that science doesn't support a link in more ways and with more experts than any other news source:

Dr. Susan Fisher-Hoch, professor at the University of Texas School of Public Health in Brownsville: "Awarding a claim would fly in the face of reason and science." Dr. Robert Schooley, professor of medicine and head of infectious diseases at the University of California at San Diego: If parents win it "would only further increase the cost of vaccines and lead to worsening of the public health."

Dr. Peter Hotez, president of the Sabin Vaccine Institute in Washington D.C.: "Focusing on vaccines is really misplaced energy."

Dr. David Witt, assistant clinical professor of medicine at the University of California at San Francisco: "My personal opinion is that if there is a victory, it is a sad comment on how energy can be diverted from real health issues and causes, to faddish beliefs and diverted angst toward a handy target,"

Dr. Pascal James Imperato, chairman of preventive medicine and community health at State University of New York Downstate Medical Center: "The scientific evidence to date does not support their claim."

If names of prominent institutions and well-credentialed experts could have settled the issue, that ABC News story would have done it. There didn't seem to be any scientist or doctor worth quoting on the parents' side, or maybe ABC News is so convinced about who's right that they didn't bother to look.

One has to wonder how the claims of 4,800 parents ever made it to federal court when it seems there is nothing to support their side.

As the week wore on, the coverage droned on. A Washington Post story on June 16th reported , "To date, no major studies have shown any connection between vaccines and autism, and the Institute of Medicine has rejected any causal relationship."

The Albuquerque Tribune reported, "Every major study and scientific organization examining this issue has found no link between vaccination and autism."

The San Francisco Chronicle ran the story, The Truth About Autism in which we were told by Dr. Rahul K. Parikh that "large, well-conducted studies have shown no link between thimerosal and autism."

Sunday, June 17th, the Boston Herald published an editorial, Autism suit puts others at risk. There the unnamed writer dismissed the parents' case as absolutely without merit. "We are aware of nothing that justifies changing the conclusion of a special committee of the Institute of Medicine, part of the National Academy of Sciences, three years ago: 'The body of epidemiological evidence favors rejection of a causal relationship between the MMR vaccine and autism,' and ditto for vaccines containing the preservative in question, thimerosal. In plain English, children get autism at the same rate whether vaccinated or not, whether the vaccine contains thimerosal or not. The committee could find no evidence to support various postulated mechanisms by which autism might result from vaccination."

Monday, June 18th ABC Nightly News ran a story about how the autism controversy is affecting the Wright family. The founders of Autism Speaks and their daughter Katie epitomize how deep the divide is. ABC News of course had to note in the report that with regard to vaccines causing autism, "There is no scientific evidence that is the case. None."

Every time I hear that pronouncement I want to shout, "How can you defend injecting mercury into children when it was never tested and approved by the FDA before it was put into use?" I've asked that question of countless reporters and no one has ever answered it.

These news reports all week sounded like press releases for those with everything at stake in the fight and not objective journalism. Readers would sadly come up empty if they were to search for major stories quoting any of the expert witnesses for the parents. What's implied of course is that there were none. It seemed as if news outlets were beating themselves over the head trying to put the claim that vaccines cause autism on a par with the flat Earth theory.

It was never noted in these articles that if the parents were proved right and the explosion in the autism rate is connected to the coincidental increase in the childhood vaccine schedule, especially the increase in mercury-containing vaccines, this will go down as the worst medical mistake in history. The implications are enormous.

On June 15th, CBS News reporter Sharyl Attkisson posted an online article, Autism: Why The Debate Rages. She outlined the suspicions, the obfuscation, and the denials that parents have had to deal with in this issue. This argument is never going quietly away no matter how many newspapers and TV networks find willing experts to tell the public that injecting mercury into children hasn't hurt them.

This week David Kirby, author of Evidence of Harm had a perfectly timed piece on the Huffington Post. In Tired of Autism Yet? he tells us this war will wage on until one side concedes and he proposes a logical way to settle things. This suggestion has come out before and it would seem a simple solution: Compare vaccinated and unvaccinated children of the same birth cohort who were born at the time of the greatest mercury exposure in the vaccine schedule.

Dan Olmsted has already shown us that it's possible. He found unvaccinated Amish and he found unvaccinated kids in a medical group in Chicago. He also found no autism in those groups and that may be why the Centers for Disease Control and Prevention hasn't jumped at the chance to settle this heated issue once and for all.

David Kirby says he'd welcome such a study. "If the drug companies, and the Bush Administration, and Congress, and the public health establishment, are so very confident in the total safety of all childhood vaccines (and their components, including mercury), then why would they reasonably object to such a study." This may become the rallying cry of thousands of parents: "Why are they afraid to look?"

Parents of autistic children see officials paralyzed in addressing autism. They will only continue to demand this issue be dealt with openly and fairly. There is no patience left with those who can only come up with new ways of repeating the same tired claims that have been around for years.

Autism can't continue to be referred to as some mystery or puzzle while we pretend that one in every 150 children has always had this disorder. It's bankrupting families and school districts. I personally know the autism controversy isn't going away because there are now far too many parents who are devoting their lives to public recognition of the disaster.

Anne McElroy Dachel lives in Chippewa Falls, Wisconsin. She can be reached at: amdachel@msn.com


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Comments 1 - 4 of 4 Add Comment Page 1 of 1
Anonymous

Posted: Jun 23 2007, 2:34 AM

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205147 This is silly. As a veteran special ed teacher, I can tell you that autism (and its "continuim") is this year's trend, just like ADD or ADHD was a few years ago. We get kids assigned to special ed for messy backpacks! Seems some people are not able to "organize" correctly. Or conduct disorder? Sigh. It all started with dyslexia, when all of a sudden, everybody had it. Did you see the article about the NYC artist who created a display for a new attention disorder disease and thousands believed it and were on the web site? Of course, all this is top secret, and if you tell the truth, you're not considered "knowledgeable" about your subject . Parents will ask to talk to the teacher who uses the most jargon (i.e. excuses) and praise them highly. God help us if merit pay ever arrives!
JRSmith

Posted: Jul 30 2007, 3:26 PM

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169244 Certainly parents would like an explanation but they are not going to get one any time soon. Parents who have children who are born with Cerebral Palsy would like to know why as well, which has been a common diagnosis for many many, many years and still has no way of telling why the child has it. But it seems that parents are more likely to accept a diagnosis of CP without trying to dig up why it happened. I do not understand why parents have this undying need to find out what caused it rather than do what they can and focus their energy on easing the troubles their children face every day and in the future. Do they not realize the importance of educating themselves not only on the organic nature of the diagnosis, but more importantly on how to tap into their child’s seemingly isolated world? I have seen children born and diagnosed with autism very very young. (I am a case worker for families of children who have developmental disabilities) In my experience each child with Autism or Autism spectrum disorders (Asperger’s, Pervasive Developmental Disorder) is as different as stone and air. There is no one cure for all Autistic children. I have see children that Doctors and other “professionals” have said will never walk, talk, make eye contact, sit still, be toilet trained, play with others, will always perseverate on spinning and hand flapping, often they are thought to be deaf (that we now can detect through modern medicine that those thought to be deaf weren’t), on and on. And I have seen some these same children do all of the things they were never expected to and more. I have also seen children not make many gains in their skills at all; the most consistent factor in the children’s success rates is the devotion of their parents to adjusting their own behavior to meet all the needs of that child. Not fighting over legislative or bureaucratic issues like, why it happened to them and their child. Often parents who act in such a way do not have the energy, patience, or knowledge to actually step in and teach their child in the best possible manner because they are physically drained from the emotional exhaustion. Parents want to blame something or someone rather than face the fact that their child is atypical and figure out how to deal with it. In recent years society seems more interested in pointing the finger somewhere and then seeking strategies to deal with the issue. This may be a bit of a stretch but, we are humans and humans evolve. Could this be a new genetic turn that the universe is expressing to us? I think it’s possible. What we should be doing is adjusting ourselves to these changes and learn as we go, building our knowledge rather than point fingers and place blame.
The other piece of this is that there have been children born for quite some time that have this disease but were never diagnosed. I know an adult in his 70’s who has since been given this diagnosis. (According to his records) he was not immunized as a child and therefore they thought he had contracted some sort of “brain illness” from NOT being immunized. Do these people realize that not all kids with Autism have been immunized? If they weren’t immunized than how did they get it? And it is not like they don’t know there are risks with any immunizations. The irony that the child “came down with” Autism after their immunizations, coinciding with the typical age of onset for Autistic Disorders really makes the parents look like they are desperate to place blame. So where does this leave us? With a bunch of parents who would rather spend their time pointing the finger, blaming others, and running from the situation emotionally instead of accepting the challenge of doing whatever it takes to help their child succeed in life. These types of parents see no light at the end of the tunnel. The parents that have their focus on the child see the light and most of the time they get their; and if they don’t they still enjoyed the journey they have taken with their child and do not view it as a burden.
friendstacy

Posted: Jul 31 2007, 8:24 AM

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I *know* good and well that my child's "autistic" behaviors started only after a major adverse reaction to the MMR shot. As her shots were delayed, this was not in line with when other children receive their first MMR. And I also know, after doing much research, that I am also probably "autistic" and that my child was already exhibiting certain traits before that MMR shot when everything snowballed.

I recognize that, at least for us, "autism" is a reaction, a symptom, if you will, of a body that is overly sensitive to certain toxins. As long as we do not eat the tiniest trace amounts of gluten, we're pretty much okay (we must do our best to avoid any sort of artificial fragrance and most commercial cleaning products, and other sorts of environmental toxins as well). I was 36 years old when I realized this, never did any doctor once figure it out, though I had been complaining of belly aches my whole life and nobody believed me, not to mention all the behavior "problems" I constantly had in school.

I beleive the way people think about autism is all wrong. It's not a disease that needs to be cured. It's a symptom of a different problem. Perhaps it's a symptom that many different problems share. It doesn't make a child (or an adult) bad or damaged or broken. It is not an excuse, something to blame for the child not acting right, and it really upsets me to see parents and teachers using it as one. And it does seem to be the flavor of the month. I was mis-diagnosed ADHD as a kid. Now they label them "autistic" instead, those kids who won't obediently stand in line and raise their hands at school. Perhaps the real problem is an authoritarian society that expects children to submit to adults' authority rather than respecting them as the autonomous human beings they should be allowed to be.
Anonymous

Posted: Dec 30 2007, 5:17 PM

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7972 The really scary thing the MMR vaccine controversy tells us is how the government will hide opinions that go against them.


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